Helpful Resources.

Here you will find links to some of the tools and research that we have found useful in our work.

AGH 2026 Survey: The Experiences of People With Dementia in Canadian Museums

In 2025-26, the Art Gallery of Hamilton conducted a national survey to explore and understand the experiences that people living with dementia and their family and friend care partners in museums across the country, funded by the Canada Council for the Arts Sector Innovation Fund. We asked what is working well, what can be done better, and most importantly what people with lived experience of dementia really want museums to know. With nearly 400 responses, the overwhelming message was about connection.

AGH 2021 Survey: Readiness of Canadian Museums for Dementia-Informed Programs

In December 2021 the Art Gallery of Hamilton conducted an online survey of museums, galleries and other cultural organizations across Canada. We asked colleagues across the country about the presence of specialized programs in their organization, and about the comfort and knowledge or experience of staff to present these programs. We received 91 submissions, view the results here.

Well-Being Measures Toolkit

The UCL Museum Wellbeing Measures Toolkit is a set of scales of measurement used to assess levels of wellbeing arising from participation in museum and gallery activities that has been trialled across the UK. The Toolkit has been designed to help people involved in running in-house or outreach museum projects, evaluate the impact of this work on the psychological wellbeing of their audiences.

Hamilton Council on Aging: What We Heard Report 2021

The What We Heard Report is a summary of the feedback that emerged from community consultations in Hamilton and Haldimand in 2021. The goal for the consultation was to gain insight on the experiences and challenges/barriers experienced by people with dementia living in Hamilton and Haldimand and their care partners. Participants were also asked to share ideas on how their communities can become dementia-friendly.

Canadian Index of Wellbeing Report 2016

When we compare trends in the wellbeing of Canadians to economic growth in the period from 1994 to 2014, the gap between GDP and our wellbeing is massive and it’s growing. When Canadians go to bed at night, they are not worried about GDP. They are worried about stringing together enough hours of part-time jobs, rising tuition fees, and affordable housing. They are thinking about the last time they got together with friends or the next time they can take a vacation. Maybe that’s why we are getting less sleep than 21 years ago. This report highlights trends in several related elements of wellbeing in peoples lives that can inform current investigations.

Alzheimer Society 2017 Awareness Survey

An online survey of 1,506 Canadians was completed between November 9 and 14, 2017 to explore the public’s awareness of and attitudes toward people living with dementia. In order to qualify, respondents needed to indicate that they’ve never been diagnosed with dementia or Alzheimer’s disease. Findings show that Canadians acknowledge that people living with dementia regularly experience many forms of stigma. Despite this understanding, stigmatizing language surrounding Alzheimer’s disease and dementia persists. In order to achieve a dementia-friendly Canada, it is essential that Canadians work to improve their awareness of the lives and experiences of people living with dementia.